All lobbying filings

Epilepsy Foundation

Epilepsy Foundation filed a Q1 report for Epilepsy Foundation on April 18, 2025.

Lobbying for Epilepsy Foundation

As filed: EPILEPSY FOUNDATION for EPILEPSY FOUNDATION.

All filings by Epilepsy Foundation · Everything Epilepsy Foundation has reported

Filing · LD-2 quarterly report Q1 report

Reporting period

1st Quarter 2025

Jan 1 - Mar 31 · Posted Apr 18, 2025

Expenses

$160,000

What this organization spent lobbying with its own staff. Reported using IRS section 6033(b)(8) definitions (method B): the three LDA methods count different costs, so an expenses figure is not comparable across filers that used different ones.

Client based in

Maryland

Official filing document

Government bodies contacted 8

The chambers, agencies and offices the filer named. It does not say who inside them was contacted, or when. Each name opens every filing that named the same body.

Lobbying activity 4

Budget/Appropriations

-H.R. 1968, Full-Year Continuing Appropriations and Extensions Act, support funding for epilepsy programs and research including $12.5 Million for the CDC Epilepsy Program; $48.9 Billion for the National Institutes of Health; $680.4 Million for the BRAIN Initiative; $26.8 Million for the VA Epilepsy Centers of Excellence; and within the Congressionally Directed Medical Research Programs: $12 Million for the Epilepsy Research Program, $8 Million for the Tuberous Sclerosis Complex Program, and $175 Million for the TBI and Psychological Health Program.

Health Issues

S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers

Civil Rights/Civil Liberties

-Support implementation of disability provisions in FAA reauthorization

Education

-Oppose changes to the Department of Education that could impede the rights of students with disabilities

Bills named in this filing 8

H.R. 1968
Full-Year Continuing Appropriations and Extensions Act, 2025
S. 494
National Plan for Epilepsy Act
H.R. 1189
National Plan for Epilepsy Act
S. 864
HELP Copays Act
S. 1024
Seizure Awareness and Preparedness Act
H.R. 2151
Seizure Awareness and Preparedness Act
S. Con. Res. 7
An original concurrent resolution setting forth the congressional budget for the United States Government for fiscal ye…
H. Con. Res. 14
Expressing disapproval of the revocation by President Biden of the Presidential permit for the Keystone XL pipeline.

Source: federal Lobbying Disclosure Act filing, reproduced as filed. Bills are parsed from the activity descriptions.