S 3981 118th Congress Senate Health Congressional oversight Genetics Health programs administration and funding Hereditary and development disorders Medical research Research administration and funding

DeOndra Dixon INCLUDE Project Act of 2024

Introduced: March 19, 2024 Introduced by: Hickenlooper, John W. Democratic · Colorado See on congress.gov

Everywhere this bill has been 2 steps

Introduced

In committee

Reported out

Passed House

Passed Senate

To President

Became law

Mar 19, 2024

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Mar 19, 2024

Introduced in Senate

Plain-English summary Congressional Research Service

DeOndra Dixon INCLUDE Project Act of 2024

This bill provides statutory authority for a National Institutes of Health (NIH) research program on Down syndrome. (Down syndrome is a genetic condition in which a person is born with an extra copy of chromosome 21, which can affect mental and physical development.)

Specifically, the bill provides statutory authority for the NIH's Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome Project (known as the INCLUDE Project). The project was initially established in 2018 to investigate the co-occurring conditions that affect those with Down syndrome (e.g., Alzheimer's disease) and their quality-of-life needs, particularly through (1) targeted research on chromosome 21, (2) assembling a large study population of individuals with Down syndrome, and (3) conducting clinical trials that include those with Down syndrome.

What's happening now March 19, 2024

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Committees of jurisdiction 1