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Newborn Screening Saves Lives Reauthorization Act of 2021

Introduced: January 25, 2021 See on congress.gov
This bill died when the 117th Congress ended
It never became law before the 117th Congress (2021–2022) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 11 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Jun 24, 2021
Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Jun 23, 2021
Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340. (consideration: CR H3026-3052; text: CR H3026-3027)
Jun 23, 2021
Passed/agreed to in House: Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340.(consideration: CR H3026-3052; text: CR H3026-3027)
Jun 23, 2021
Pursuant to the provisions of H. Res. 486, proceedings on H.R. 482 are considered vacated.
Jun 22, 2021
At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.
Jun 22, 2021
DEBATE - The House proceeded with forty minutes of debate on H.R. 482.
Jun 22, 2021
Considered under suspension of the rules. (consideration: CR H2940-2942; text: CR H2940-2941)
Jun 22, 2021
Mr. Pallone moved to suspend the rules and pass the bill.
Feb 2, 2021
Referred to the Subcommittee on Health.
Jan 25, 2021
Referred to the House Committee on Energy and Commerce.
Jan 25, 2021
Introduced in House
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 Plain-English summary Congressional Research Service

Newborn Screening Saves Lives Reauthorization Act of 2021

This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases.

Among its changes, the bill reauthorizes and makes mandatory

  • the Hunter Kelly Research Program at the National Institutes of Health, and
  • national surveillance activities conducted by the Centers for Disease Control and Prevention.

The bill also aligns statutory requirements for research on non-identified newborn blood spots with federal regulations governing research on human subjects. These blood spots are collected as part of newborn screening programs, and some states make them available for biomedical and public health research. Under current regulations, research on non-identified bio-specimens such as blood spots is not considered to be research on human subjects, to which additional protections apply.

What's happening now June 24, 2021

Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

 Related & companion bills 2
 Bill text 3 versions

Source documents hosted by congress.gov.

 Committees of jurisdiction 3
 Cosponsors 48
R
Bilirakis, Gus M.
Florida · Jun 22, 2021
R
Comer, James
Kentucky · Jun 22, 2021
D
Brownley, Julia
California · Jun 11, 2021
D
DelBene, Suzan K.
Washington · Jun 11, 2021
R
Van Drew, Jefferson
New Jersey · Jun 11, 2021
Davis, Rodney
· May 25, 2021
D
DeSaulnier, Mark
California · May 25, 2021
Jacobs, Chris
· May 25, 2021
D
Ross, Deborah K.
North Carolina · May 25, 2021
R
Bacon, Don
Nebraska · May 7, 2021
D
Krishnamoorthi, Raja
Illinois · May 7, 2021
R
Moore, Blake D.
Utah · May 7, 2021
D
Barragán, Nanette Diaz
California · Mar 19, 2021
D
Himes, James A.
Connecticut · Mar 19, 2021
D
Norton, Eleanor Holmes
District of Columbia · Mar 19, 2021
D
Bonamici, Suzanne
Oregon · Mar 11, 2021
D
Carbajal, Salud O.
California · Mar 11, 2021
D
Hayes, Jahana
Connecticut · Mar 11, 2021
D
Meeks, Gregory W.
New York · Mar 11, 2021
O'Halleran, Tom
· Mar 11, 2021
Wexton, Jennifer
· Mar 11, 2021
Yarmuth, John
· Mar 11, 2021
D
Chu, Judy
California · Feb 5, 2021
R
Cole, Tom
Oklahoma · Feb 5, 2021
D
Larsen, Rick
Washington · Feb 5, 2021
D
Underwood, Lauren
Illinois · Feb 5, 2021
Axne, Cynthia
· Jan 25, 2021
Butterfield, G. K.
· Jan 25, 2021
R
Calvert, Ken
California · Jan 25, 2021
D
Casten, Sean
Illinois · Jan 25, 2021
D
Castor, Kathy
Florida · Jan 25, 2021
D
Clark, Katherine M.
Massachusetts · Jan 25, 2021
D
Clarke, Yvette D.
New York · Jan 25, 2021
D
Cohen, Steve
Tennessee · Jan 25, 2021
D
Davis, Danny K.
Illinois · Jan 25, 2021
D
DeGette, Diana
Colorado · Jan 25, 2021
R
Fitzpatrick, Brian K.
Pennsylvania · Jan 25, 2021
D
Gallego, Ruben
Arizona · Jan 25, 2021
HASTINGS, ALCEE
· Jan 25, 2021
Herrera Beutler, Jaime
· Jan 25, 2021
D
Khanna, Ro
California · Jan 25, 2021
D
Neguse, Joe
Colorado · Jan 25, 2021
D
Raskin, Jamie
Maryland · Jan 25, 2021
R
Simpson, Michael K.
Idaho · Jan 25, 2021
D
Smith, Adam
Washington · Jan 25, 2021
Stewart, Chris
· Jan 25, 2021
Stivers, Steve
· Jan 25, 2021
D
Williams, Nikema
Georgia · Jan 25, 2021
Cite this page click to expand
APA
U.S. Congress. (2026). H.R. 482: Newborn Screening Saves Lives Reauthorization Act of 2021. 117th Congress. Open America. https://openamerica.io/bill/117-HR-482/
MLA
"H.R. 482: Newborn Screening Saves Lives Reauthorization Act of 2021." 117th Congress, 2026, Open America, https://openamerica.io/bill/117-HR-482/.
Bluebook (legal)
H.R. 482, 117th Cong. (2026), https://openamerica.io/bill/117-HR-482/.
Markdown link
[H.R. 482: Newborn Screening Saves Lives Reauthorization Act of 2021](https://openamerica.io/bill/117-HR-482/)
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