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S 1012 116th Congress Senate Health Administrative law and regulatory procedures Criminal investigation, prosecution, interrogation Department of Health and Human Services Disability and health-based discrimination Drug, alcohol, tobacco use Emergency medical services and trauma care Employment discrimination and employee rights Evidence and witnesses Health information and medical records Health personnel Housing discrimination Medical education Prescription drugs Right of privacy

Protecting Jessica Grubb’s Legacy Act

Introduced: October 16, 2019 See on congress.gov
This bill died when the 116th Congress ended
It never became law before the 116th Congress (2019–2020) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 2 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Apr 3, 2019
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Apr 3, 2019
Introduced in Senate
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 Plain-English summary Congressional Research Service

Protecting Jessica Grubb's Legacy Act

This bill more closely aligns the federal privacy standards for substance use disorder (SUD) patient records with the standards under the Health Insurance Portability and Accountability Act (HIPAA). Specifically, the bill authorizes the disclosure of SUD patient records without a patient's written consent to: (1) a covered entity for the purposes of treatment, payment, and health care operations, as long as the disclosure is made in accordance with HIPAA; and (2) a public health authority, as long as the content of the disclosure meets HIPAA standards regarding de-identified information. Current law authorizes disclosure of SUD patient records without a patient's written consent only to medical personnel in a medical emergency, to specified personnel for research or program evaluations, or pursuant to a court order.

The bill also repeals and replaces criminal penalties for certain violations involving SUD patient records with the HIPAA civil penalty structure. It also applies HIPAA criminal penalties to wrongful disclosures of SUD patient records. In addition, the bill expands the current prohibition against using SUD patient records in criminal proceedings to include any use in specified federal, state, and local criminal and civil actions.

The bill prohibits certain discrimination based on the release of SUD information under this bill.

What's happening now April 3, 2019

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

 Related & companion bills 1
 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 1
Cite this page click to expand
APA
U.S. Congress. (2026). S. 1012: Protecting Jessica Grubb’s Legacy Act. 116th Congress. Open America. https://openamerica.io/bill/116-S-1012/
MLA
"S. 1012: Protecting Jessica Grubb’s Legacy Act." 116th Congress, 2026, Open America, https://openamerica.io/bill/116-S-1012/.
Bluebook (legal)
S. 1012, 116th Cong. (2026), https://openamerica.io/bill/116-S-1012/.
Markdown link
[S. 1012: Protecting Jessica Grubb’s Legacy Act](https://openamerica.io/bill/116-S-1012/)
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