HR 534 116th Congress House Health Advisory bodies Child health Health promotion and preventive care Hereditary and development disorders Medical tests and diagnostic methods Neurological disorders

Aidan’s Law

Introduced: December 4, 2019 Introduced by: Clarke, Yvette D. Democratic · New York See on congress.gov

Everywhere this bill has been 3 steps

Introduced

In committee

Reported out

Passed House

Passed Senate

To President

Became law

Jan 25, 2019

Referred to the Subcommittee on Health.

Jan 14, 2019

Referred to the House Committee on Energy and Commerce.

Jan 14, 2019

Introduced in House

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Plain-English summary Congressional Research Service

Aidan's Law

This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children.

The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

What's happening now January 25, 2019

Referred to the Subcommittee on Health.

Bill text 1 version