HR 534
116th Congress
House
Health
Advisory bodies
Child health
Health promotion and preventive care
Hereditary and development disorders
Medical tests and diagnostic methods
Neurological disorders
Aidan’s Law
Introduced: January 14, 2019
Introduced by:
Clarke, Yvette D.
Democratic
· New York
See on congress.gov
Everywhere this bill has been
3 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Jan 25, 2019
Referred to the Subcommittee on Health.
Jan 14, 2019
Referred to the House Committee on Energy and Commerce.
Jan 14, 2019
Introduced in House
Plain-English summary
Aidan's Law
This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children.
The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.
What's happening now
Referred to the Subcommittee on Health.
Committees of jurisdiction
2