HR 5115
115th Congress
House
Health
Congressional oversight
Government information and archives
Health information and medical records
Health personnel
Health programs administration and funding
Health promotion and preventive care
Medical research
Medical tests and diagnostic methods
Public-private cooperation
Research administration and funding
Research and development
RARE Act of 2018
Everywhere this bill has been
3 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Mar 2, 2018
Referred to the Subcommittee on Health.
Feb 27, 2018
Referred to the House Committee on Energy and Commerce.
Feb 27, 2018
Introduced in House
Plain-English summary
Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018
This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.
The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.
What's happening now
Referred to the Subcommittee on Health.
Committees of jurisdiction
2