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HR 5115 115th Congress House

RARE Act of 2018

Official title: To expand and improve the programs and activities of the Department of Health and Human Services for awareness, education, research, surveillance, diagnosis, a… Show full official titleShow less

Official title: To expand and improve the programs and activities of the Department of Health and Human Services for awareness, education, research, surveillance, diagnosis, and treatment concerning rare diseases and conditions.

Introduced: February 27, 2018 Introduced by: Carson, André Democratic · Indiana See on congress.gov
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This bill died when the 115th Congress ended
It never became law before the 115th Congress (2017–2018) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 3 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Mar 2, 2018
Referred to the Subcommittee on Health.
Feb 27, 2018
Referred to the House Committee on Energy and Commerce.
Feb 27, 2018
Introduced in House
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 Latest action March 2, 2018

Referred to the Subcommittee on Health.

 Plain-English summary Congressional Research Service

Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018

This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.

The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.

 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 2
 Cosponsors 15
All 15 Democratic 8 Republican 1
D
Beatty, Joyce
Ohio · Nov 6, 2018
MacArthur, Thomas
· Nov 6, 2018
 D
Lieu, Ted
California · Oct 2, 2018
Herrera Beutler, Jaime
· Sep 27, 2018
 D
Suozzi, Thomas R.
New York · Sep 25, 2018
 D
Brownley, Julia
California · Sep 6, 2018
Esty, Elizabeth
· Sep 6, 2018
Roskam, Peter
· Sep 6, 2018
 R
Fitzpatrick, Brian K.
Pennsylvania · Aug 28, 2018
 D
Khanna, Ro
California · Aug 28, 2018
 D
Matsui, Doris O.
California · Jul 3, 2018
VISCLOSKY, PETER
· May 7, 2018
 D
Pocan, Mark
Wisconsin · Apr 13, 2018
 D
Norton, Eleanor Holmes
District of Columbia · Mar 23, 2018
Costello, Ryan
· Feb 27, 2018
Cite this page click to expand
APA
U.S. Congress. (2026). H.R. 5115: RARE Act of 2018. 115th Congress. Open America. https://openamerica.io/bill/115-HR-5115/
MLA
"H.R. 5115: RARE Act of 2018." 115th Congress, 2026, Open America, https://openamerica.io/bill/115-HR-5115/.
Bluebook (legal)
H.R. 5115, 115th Cong. (2026), https://openamerica.io/bill/115-HR-5115/.
Markdown link
[H.R. 5115: RARE Act of 2018](https://openamerica.io/bill/115-HR-5115/)
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