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S 2744 114th Congress Senate Health Civil actions and liability Drug, alcohol, tobacco use Evidence and witnesses Freedom of information Health information and medical records Medical research Mental health Research administration and funding Right of privacy

Genetic Research Privacy Protection Act

Introduced: April 5, 2016 Introduced by: Warren, Elizabeth Democratic · Massachusetts See on congress.gov
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 Everywhere this bill has been 2 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Apr 5, 2016
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Apr 5, 2016
Introduced in Senate
 Plain-English summary Congressional Research Service

Genetic Research Privacy Protection Act

This bill amends the Public Health Service Act to revise provisions regarding disclosure by researchers of the identifiable, sensitive information of research subjects. The Department of Health and Human Services (HHS) must prohibit researchers from disclosing such information from federally funded research to persons not connected to the research. Researchers may apply to have other research covered by this prohibition.

Disclosures of such information are permitted if required by law, necessary for the medical treatment of the research subject, made with the consent of the subject, or made for the purposes of other research that is in compliance with regulations regarding protection of subjects.

HHS may exempt identifiable information collected for biomedical research from disclosure under the Freedom of Information Act.
What's happening now April 5, 2016

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

 Committees of jurisdiction 1