Expressing the sense of Congress in support of further research and activities to increase public awareness, professional education, diagnosis, and treatment of Dandy-Walker syndrome and hydrocephalus.
(This measure has not been amended since it was passed by the House on June 26, 2008. The summary of that version is repeated here.)
Commends the Director of the National Institutes of Health (NIH) for working with leading scientists and researchers to organize the first NIH conference on hydrocephalus in September 2005 and the Inaugural Cerebellar Development: Bench to Bedside International Conference in November 2006.
Expresses the sense of Congress that: (1) the Director of NIH should continue the current collaboration among the National Human Genome Research Institute, the National Institute of Biomedical Imaging and Bioengineering, the National Institute of Child Health and Human Development, the National Institute of Neurological Disorders and Stroke, and the Office of Rare Diseases with respect to Dandy-Walker syndrome; (2) further research into Dandy-Walker syndrome and hydrocephalus should be conducted and supported; and (3) public awareness and professional education regarding Dandy-Walker research should increase through partnerships between the federal government and patient advocacy organizations.
Message on Senate action sent to the House.