Skip to main content
HR 1353 109th Congress House Health Adoption Birth defects Child development Civil Rights and Liberties, Minority Issues Communication in medicine Communication in science Congress Congressional investigations Congressional reporting requirements Data banks Directories Down's syndrome Economics and Public Finance Electronic government information Epidemiology Families Family services Fetus Genetic counseling

Prenatally Diagnosed Condition Awareness Act

Introduced: March 16, 2005 See on congress.gov
 Everywhere this bill has been 3 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Mar 22, 2005
Referred to the Subcommittee on Health.
Mar 16, 2005
Referred to the House Committee on Energy and Commerce.
Mar 16, 2005
Introduced in House
 Plain-English summary Congressional Research Service

Prenatally Diagnosed Condition Awareness Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through either the Director of the National Institutes of Health (NIH), the Director of the Centers for Disease Control and Prevention (CDC), or the Administrator of the Health Resources and Services Administration (HRSA), to authorize and oversee certain activities relating to Down syndrome or other prenatally diagnosed conditions, including the awarding of grants, contracts or cooperative agreements to: (1) collect, synthesize, and disseminate current scientific information; and (2) coordinate the provision of, and access to, supportive services for patients affected, which shall include a telephone hotline, an information clearinghouse, peer-support programs, and registries of families willing to adopt children affected by such conditions.

Requires the Secretary, acting through the Director of CDC, to provide assistance to State and local heath departments to integrate the results of prenatal testing into State-based vital statistics and birth defects surveillance programs.

Requires a health care provider to provide certain information to a patient who receives a positive test result from a prenatal test for such a condition, including: (1) up-to-date scientific information concerning the life expectancy, clinical course, and intellectual and functional development and treatment options for a fetus diagnosed with, or a child born with, such conditions; and (2) referrals to supportive service providers.

Requires the Government Accountability Office (GAO) to submit a report to Congress concerning the effectiveness of current health care and family support programs serving as resources for the families of children with disabilities.

What's happening now March 22, 2005

Referred to the Subcommittee on Health.

 Committees of jurisdiction 2