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S 1995 107th Congress Senate

Genetic Information Nondiscrimination Act of 2002

Official title: A bill to prohibit discrimination on the basis of genetic information with respect to health insurance and employment.

Introduced: March 6, 2002 See on congress.gov
Civil Rights and Liberties, Minority Issues Administrative procedureApprenticeshipCivil actions and liabilityCivil rights enforcement
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DamagesDepartment of Health and Human ServicesDepartment of LaborDepartment of the TreasuryDiscrimination in employmentDiscrimination in insuranceDiscrimination in medical careDismissal of employeesEmployee health benefitsEmployee rightsEmployee selectionEmployment agenciesEnvironmental ProtectionEqual Employment Opportunity CommissionFamiliesFinance and Financial SectorGenetic counselingGenetic screeningGovernment Operations and PoliticsHealthHealth insuranceHealth insurance industryInsurance premiumsInsurance ratesLabor and EmploymentLabor union membershipLabor unionsLabor-management committeesLawMedical geneticsMedical recordsMedical testsMine safetyOccupational health and safetyPosition classificationPunitive damagesRight of privacyStandards
This bill died when the 107th Congress ended
It never became law before the 107th Congress (2001–2002) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 3 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Mar 6, 2002
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Mar 6, 2002
Sponsor introductory remarks on measure. (CR S1613-1614)
Mar 6, 2002
Introduced in Senate
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 Latest action March 6, 2002

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

 Plain-English summary Congressional Research Service
Genetic Information Nondiscrimination Act of 2002 - Amends the Employee Retirement Income Security Act of 1974, the Public Health Service Act, and the Internal Revenue Code to prohibit health discrimination on the basis of genetic information or services. Defines genetic information as genetic tests of an individual or family member or occurrence of a disease or disorder in family members used to predict risk of disease in asymptomatic or undiagnosed individuals. Defines genetic services as health services provided for genetic education and counseling.

Prohibits group health plans or health insurers offering group coverage from using genetic information to impose enrollment restrictions or adjust group premiums. Prohibits requests for genetic testing or results except as necessary for treatment, payment, or health care operations.

Amends the Public Health Service Act to prohibit such discrimination in coverage offered in the individual market.

Requires the Secretary of the Treasury to issue final regulations, coordinating with the Secretaries of Health and Human Services and Labor through an interagency memorandum of understanding.

Makes it an unlawful employment practice for an employer, employment agency, labor organization, or training program to discriminate against an individual or deprive such individual of employment opportunities because of genetic information. Prohibits the collection of genetic information except where necessary to monitor the effects of toxic substances in the workplace when authorized by the employee, or as required by law.

Requires genetic information to be treated as part of an individual's confidential medical record, limiting disclosure to the individual, the family, health researchers, or as required by law or court order.

Grants enforcement powers to the Equal Employment Opportunity Commission.

 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 1
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APA
U.S. Congress. (2026). S. 1995: Genetic Information Nondiscrimination Act of 2002. 107th Congress. Open America. https://openamerica.io/bill/107-S-1995/
MLA
"S. 1995: Genetic Information Nondiscrimination Act of 2002." 107th Congress, 2026, Open America, https://openamerica.io/bill/107-S-1995/.
Bluebook (legal)
S. 1995, 107th Cong. (2026), https://openamerica.io/bill/107-S-1995/.
Markdown link
[S. 1995: Genetic Information Nondiscrimination Act of 2002](https://openamerica.io/bill/107-S-1995/)
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