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S 1379 107th Congress Senate

Rare Diseases Act of 2001

Official title: A bill to amend the Public Health Service Act to establish an Office of Rare Diseases at the National Institutes of Health, and for other purposes.

Introduced: October 9, 2001 See on congress.gov
Health Agriculture and FoodAuthorizationCommunication in medicineCongress
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Congressional reporting requirementsDepartment of Health and Human ServicesDietDiseasesEconomics and Public FinanceEducationExecutive reorganizationFederal aid to medical educationFederal aid to medical researchGovernment Operations and PoliticsGovernment publicityHealth educationHealth information systemsHealth planningHereditary diseasesHigher educationMedical educationMedical geneticsMedical researchOrphan drugsParamedical educationPharmaceutical researchResearch centersResearch grantsScience, Technology, Communications
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This bill died when the 107th Congress ended
It never became law before the 107th Congress (2001–2002) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 6 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Dec 18, 2001
Placed on Senate Legislative Calendar under General Orders. Calendar No. 298.
Dec 18, 2001
Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. With written report No. 107-129.
Oct 16, 2001
Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
Aug 3, 2001
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Aug 3, 2001
Sponsor introductory remarks on measure. (CR S8952)
Aug 3, 2001
Introduced in Senate
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 Latest action December 18, 2001

Placed on Senate Legislative Calendar under General Orders. Calendar No. 298.

 Plain-English summary Congressional Research Service
Rare Diseases Act of 2001 - Amends the Pubic Health Service Act to: (1) establish an Office of Rare Diseases at the National Institutes of Health; and (2) provide for rare disease regional centers of excellence. Sets forth the duties of such Office and regional centers, including research and educational duties. Defines rare disease as any disease or condition affecting less than 200,000 persons in the United States.

Amends the Orphan Drug Act to authorize appropriations for FY 2002 for grants and contracts for the development of drugs for rare diseases and conditions.

 Related & companion bills 1
  • HR 4013 Related bill Rare Diseases Act of 2002
 Bill text 2 versions

Source documents hosted by congress.gov.

 Committees of jurisdiction 1
 Cosponsors 4
All 4 Democratic 3 Republican 1
D
Schumer, Charles E.
New York · Oct 4, 2002
 D
Cantwell, Maria
Washington · Feb 13, 2002
 R
Collins, Susan M.
Maine · Oct 9, 2001
 D
Durbin, Richard J.
Illinois · Sep 26, 2001
Cite this page click to expand
APA
U.S. Congress. (2026). S. 1379: Rare Diseases Act of 2001. 107th Congress. Open America. https://openamerica.io/bill/107-S-1379/
MLA
"S. 1379: Rare Diseases Act of 2001." 107th Congress, 2026, Open America, https://openamerica.io/bill/107-S-1379/.
Bluebook (legal)
S. 1379, 107th Cong. (2026), https://openamerica.io/bill/107-S-1379/.
Markdown link
[S. 1379: Rare Diseases Act of 2001](https://openamerica.io/bill/107-S-1379/)
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